I lift mine eyes, but dimm’d with grief No everlasting hills I see; My life is in the fallen leaf: O Jesus, quicken me.
My life is like a frozen thing, No bud nor greenness can I see: Yet rise it shall–the sap of Spring; O Jesus, rise in me. ~Christina Rossetti from “A Better Resurrection”
I remember panicking as a small child when my mother would help me put on or take off a sweater with a particularly tight turtleneck opening, as my head would get “stuck” momentarily until she could free me. It caused an intense feeling of being unable to breathe or see – literally shrouded. I was trapped and held captive by something as innocuous as a piece of clothing.
That same feeling still overwhelms me at times when I’m frozen in a winter of my flaws and deficiencies, bruised and fallen in my struggles to be freed.
My only hope for salvage is a new life quickening within me. There is no freedom without spring sap flowing, His life blood rising in what is left of my dried husk.
And rise it shall — the confining shroud of discouragement discarded and cast aside.
Now that it is spring once again, I can breathe free, quickened.
In a dry wind like this, snow and ice can pass directly into the air as a gas without having first melted to water. This process is called sublimation; tonight the snow in the yard and the ice in the creek sublime. A breeze buffets my palm held a foot from the wall. A wind like this does my breathing for me: it engenders something quick and kicking in my lungs. Pliny believed the mares of the Portuguese used to raise their tails to the wind, ‘and turn them full against it, and so conceive that genital air instead of natural seed; in such sort, as they become great withal, and quicken in their time, and bring forth foals as swift as the wind…’.
A single cell quivers at a windy embrace; it swells and splits, it bubbles into a raspberry; a dark clot starts to throb. Soon something perfect is born. Something wholly new rides the wind, something fleet and fleeting I’m likely to miss. ~Annie Dillard from Pilgrim at Tinker Creek
Whenever we have a blowing northeaster, I assumed that our snow simply blew southwest and we were left with nothing but a skiff of white here. But I was wrong. The snow and ice are sublimated, disappearing into the air as vapor.
I wish I could be so transformed, blown into something wholly new and free, not tethered and earth-bound.
Our Creator God does just that: we are so very sublime through the power of His breath.
Through our scientific and technological genius, we have made of this world a neighborhood and yet we have not had the ethical commitment to make of it a brotherhood. We must all learn to live together as brothers or we will all perish together as fools. We are tied together in the single garment of destiny, caught in an inescapable network of mutuality. And whatever affects one directly affects all indirectly.
This is the way God’s universe is made; this is the way it is structured.
John Donne caught it years ago and placed it in graphic terms: “No man is an island entire of itself. Every man is a piece of the continent, a part of the main.” And he goes on toward the end to say, “Any man’s death diminishes me because I am involved in mankind; therefore send not to know for whom the bell tolls; it tolls for thee.”
We must see this, believe this, and live by it… ~Martin Luther King Jr. from a sermon in A Knock At Midnight
Dr. King’s words and wisdom in his sermons spoken nearly sixty years ago still inform us of our shortcomings. We flounder in flaws and brokenness despite our shared global neighborhood, persisting in a resistance to serve one another in brotherhood.
We still stand apart from one another; even as the bell tolls, we suffer the divisiveness from a lack of humility, grace and love.
Perhaps today, for a day, for a week, for a year, we can unite in our shared tears: shed for continued strife and disagreement, shed for injustice that results in senseless killings, shed for our inability to hold up one another as brothers and sisters holy in God’s eyes.
We weep together as the light dawns on this day, knowing as Dr. King knew, a new day will come when the Lord God will wipe tears away from all faces and all colors — a brotherhood and sisterhood created exactly as He intends.
Sometimes when I watch trees sway, From the window or the door. I shall set forth for somewhere, I shall make the reckless choice Some day when they are in voice And tossing so as to scare The white clouds over them on. I shall have less to say, But I shall be gone. ~Robert Frost from “The Sound of Trees”
There is a thing in me that dreamed of trees, A quiet house, some green and modest acres A little way from every troubling town, Al little way from factories, schools, laments. I would have time, I thought, and time to spare, With only streams and birds for company, To build out of my life a few wild stanzas. And then it came to me, that so was death, A little way away from everywhere. ~Mary Oliver from “A Dream of Trees” from New and Selected Poems
As I wind down my work load, for once sharing the calls at night, and allowing others to manage the day time urgencies,
I wonder if I shall have less to say, and whether I will become less myself.
A life of non-stop doctoring means having little time for anything else. Soon I will have time and time to spare.
I wonder about the trees and how To build out of my life a few wild stanzas.
The thing to cling to is the sense of expectation. Who knows what may occur in the next breath? In the pallor of another morning we neither Anticipated nor wanted! … we live in wonder, Blaze in a cycle of passion and apprehension Though once we lay and waited for a death. ~Carolyn Kizer from “Lines to Accompany Flowers For Eve”
Over seventy years ago my maternal grandmother, having experienced months of fatigue, abdominal discomfort and weight loss, underwent exploratory abdominal surgery, the only truly diagnostic tool available at the time. One brief look by the surgeon told him everything he needed to know: her liver and omentum were riddled with tumor, clearly advanced, with the primary source unknown and ultimately unimportant. He quickly closed her up and went to speak with her family – my grandfather, uncle and mother. He told them there was no hope and no treatment, to take her back home to their rural wheat farm in the Palouse country of Eastern Washington and allow her to resume what activities she could with the time she had left. He said she had only a few months to live, and he recommended that they simply tell her that no cause was found for her symptoms.
So that is exactly what they did. It was standard practice at the time that an unfortunate diagnosis be kept secret from terminally ill patients, assuming the patient, if told, would simply despair and lose hope. My grandmother passed away within a few weeks, growing weaker and weaker to the point of needing rehospitalization prior to her death. She never was told what was wrong and, more astonishing, she never asked.
But surely she knew deep in her heart. She must have experienced some overwhelmingly dark moments of pain and anxiety, never hearing the truth so that she could talk about it with her physician and those she loved. But the conceit of the medical profession at the time, and indeed, for the next 20-30 years, was that the patient did not need to know, and indeed could be harmed by information about their illness.
We modern more enlightened health care professionals know better. We know that our physician predecessors were avoiding uncomfortable conversations by exercising the “the patient doesn’t need to know and the doctor knows better” mandate. The physician had complete control of the health care information–the details of the physical exam, the labs, the xray results, the surgical biopsy results–and the patient and family’s duty was to follow the physician’s dictates and instructions, with no questions asked.
Even during my medical training in the seventies, there was still a whiff of conceit about “the patient doesn’t need to know the details.” During rounds, the attending physician would discuss diseases right across the hospital bed over the head of the afflicted patient, who would often worriedly glance back and worth at the impassive faces of the intently listening medical student, intern and resident team. There would be the attending’s brief pat on the patient’s shoulder at the end of the discussion when he would say, “someone will be back to explain all this to you.” But of course, none of us really wanted to and rarely did.
Eventually I did learn how important it was to the patient that we provide that information. I remember one patient who spoke little English, a Chinese mother of three in her thirties, who grabbed my hand as I turned to leave with my team, and looked me in the eye with a desperation I have never forgotten. She knew enough English to understand that what the attending had just said was that there was no treatment to cure her and she only had weeks to live. Her previously undiagnosed pancreatic cancer had caused a painless jaundice resulting in her hospitalization and the surgeon had determined she was not a candidate for a Whipple procedure. When I returned to sit with her and her husband to talk about her prognosis, I laid it all out for them as clearly as I could. She thanked me, gripping my hands with her tear soaked fingers. She was so grateful to know what she was dealing with so she could make her plans, in her own way.
Forty years into my practice of medicine, I now spend a significant part of my patient care time providing information that helps the patient make plans, in their own way. I figure everything I know needs to be shared with the patient, in real time as much as possible, with all the options and possibilities spelled out. That means extra work, to be sure, and I spend extra time on patient care after hours more than ever before in my efforts to communicate with my patients. I’m not alone as a provider who feels called to this sharing of the medical chart – the nationwide effort is referred to as Open Notes.
Every electronic medical record chart note I write is sent online to the patient via a secure password protected web portal, usually from the exam room as I talk with the patient. Patient education materials are attached to the progress note so the patient has very specific descriptions, instructions and further web links to learn more about the diagnosis and my recommended treatment plan. If the diagnosis is uncertain, then the differential is shared with the patient electronically so they know what I am thinking. The patient’s Major Problem List is on every progress note, as are their medications, dosages and allergies, what health maintenance measures are coming due or overdue, in addition to their “risk list” of alcohol overuse, recreational drug use including marijuana, eating and exercise habits and tobacco history. Everything is there, warts and all, and nothing is held back from their scrutiny.
Within a few hours of their clinic visit, they receive their actual lab work and copies of imaging studies electronically, accompanied by an interpretation and my recommendations. No more “you’ll hear from us only if it is abnormal” or “it may be next week until you hear anything”. We all know how quickly most lab and imaging results, as well as pathology results are available to us as providers, and our patients deserve the courtesy of knowing as soon as we do, and now regulations insist that we share the results. Waiting for results is one of the most agonizing times a patient can experience. If it is something serious that necessitates a direct conversation, I call the patient just as I’ve always done. When I send electronic information to my patients, I solicit their questions, worries and concerns by return message. All of this electronic interchange between myself and my patient is recorded directly into the patient chart automatically, without the duplicative effort of having to summarize from phone calls.
Essentially, the patient is now a contributor/participant in writing the “progress” (or lack thereof) note in the electronic medical chart.
In this new kind of health care team, the patient has become a true partner in their illness management and health maintenance because they now have the information to deal with the diagnosis and treatment plan. I don’t ever hear “oh, don’t bother me with the details, just tell me what you’re going to do.”
My patients are empowered in their pursuit of well-being, whether living with chronic illness, or recovering from acute illness. No more secrets. No more power differential. No more “I know best.”
After all, it is my patient’s life I am impacting by providing them open access to the self-knowledge that leads them to a better appreciation for their health and and clearer understanding of their illnesses.
As a physician, I am impacted as well; it is a privilege to live and work in an age where such illumination in a doctor~patient relationship is possible.
The world is filled, and filled with the Absolute. To see this is to be made free. ~Pierre Teilhard de Chardin
And God placed all things under his feet and appointed him to be head over everything for the church, which is his body, the fullness of him who fills everything in every way. Ephesians 1:22-23
My mouth will utter praise of the Lord, of the Lord through whom all things have been made and who has been made amidst all things;
who is the Revealer of His Father, Creator of His Mother;
who is the Son of God from His Father without a mother,
the Son of Man through His mother without a father.
He is as great as the Day of Angels, and as small as a day in the life of men; He is the Word of God before all ages, and the Word made flesh at the destined time. Maker of the sun, He is made beneath the sun.
In His Father He abides; from His mother He goes forth.
Creator of heaven and earth, under the heavens He was born upon earth.
Wise beyond all speech, as a speechless child, He is wise. Filling the whole world, He lies in a manger.
Ruling the stars, He nurses at His mother’s breast.
He is great in the form of God and small in the form of a servant, so much so that His greatness is not diminished by His smallness, nor His smallness concealed by His greatness. ~St. Augustine
How empty was the world before Christ! From Mary’s untouched womb to Joseph’s futile search for a place to sleep in Bethlehem, to the shepherds’ dismal existence on the hillsides, to Simeon’s arms aching to hold the Messiah, to Anna’s long wait in the temple.
In a million ways, seen and unseen, the empty spaces were filled, the hunger sated, the thirst quenched, the rest assured. He joined us so we shall never lack again. He became one with us–all is fulfilled and filled fully.